Patient Support Program: VOXZOGO® Mentor Support for Families

What you can expect with the VOXZOGO Mentor Program

Whether your family is considering treatment or you’re already on your VOXZOGO journey, an experienced mentor can help you along the way.

One-to-one, open conversations

with someone who’s been where you are.

Personal insights

from their family’s everyday experience.

Understanding and support

for you and your family’s unique needs.

Real experiences from real families

“This is something that I wish I had when we were making our VOXZOGO decision and new to the treatment experience. So, I am happy to provide it for others.”

– Erin P, Mentor, Parent

“It’s rewarding to connect with a parent, answer their questions, and help them along their journey.”

– Jennifer S, Mentor, Parent

How the program works

Share a bit about yourself below to join the program

BioMarin Bringing Voices Together network will reach out to confirm availability and preferences

Connect with your mentor to begin having conversations

*Required fields

First name*

Last name*

Email*

US postal code*

Phone number*

What best describes you?*

Which language do you prefer?*

By checking this box, I confirm I am at least 18 years old; and confirm I agree to BioMarin’s Privacy Policy and CCPA Notice and Terms of Use. I consent to BioMarin providing my contact information (email address and/or phone number) above to BioMarin’s mentor program partner, such that the partner can contact and enroll me into the VOXZOGO Mentor Program. I understand that once enrolled, BioMarin’s partner will share any personal information I’ve provided to them with BioMarin. I consent to receive more information about VOXZOGO and be connected with a local representative to learn more about VOXZOGO, including marketing communications.

Family stories with VOXZOGO

Hear from families like yours who choose VOXZOGO.

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IMPORTANT SAFETY INFORMATION

What is the most important safety information about VOXZOGO?

VOXZOGO may cause serious side effects including a temporary decrease in blood pressure in some patients. To reduce the risk of a decrease in blood pressure and associated symptoms (dizziness, feeling tired, or nausea), patients should eat a meal and drink 8 to 10 ounces of fluid within 1 hour before receiving VOXZOGO.

What are the most common side effects of VOXZOGO?

The most common side effects of VOXZOGO include injection site reactions (including redness, itching, swelling, bruising, rash, hives, and injection site pain), high levels of blood alkaline phosphatase shown in blood tests, vomiting, joint pain, decreased blood pressure, and stomach ache. These are not all the possible side effects of VOXZOGO. Ask your healthcare provider for medical advice about side effects, and about any side effects that bother the patient or that do not go away.

How is VOXZOGO taken?

VOXZOGO is taken daily as an injection given under the skin, administered by a caregiver after a healthcare provider determines the caregiver is able to administer VOXZOGO. Do not try to inject VOXZOGO until you have been shown the right way by your healthcare provider. VOXZOGO is supplied with Instructions for Use that describe the steps for preparing, injecting, and disposing VOXZOGO. Caregivers should review the Instructions for Use for guidance and any time they receive a refill of VOXZOGO in case any changes have been made.
Inject VOXZOGO 1 time every day, at about the same time each day. If a dose of VOXZOGO is missed, it can be given within 12 hours from the missed dose. After 12 hours, skip the missed dose and administer the next daily dose as usual.
The dose of VOXZOGO is based on body weight. Your healthcare provider will adjust the dose based on changes in weight following regular check-ups.
Your healthcare provider will monitor the patient’s growth and tell you when to stop taking VOXZOGO if they determine the patient is no longer able to grow. Stop administering VOXZOGO if instructed by your healthcare provider.

What should you tell the doctor before or during taking VOXZOGO?

Tell your doctor about all of the patient’s medical conditions including
- If the patient has heart disease (cardiac or vascular disease), or if the patient is on blood pressure medicine (anti-hypertensive medicine).
- If the patient has kidney problems or renal impairment.
- If the patient is pregnant or plans to become pregnant. It is not known if VOXZOGO will harm the unborn baby.
- If the patient is breastfeeding or plans to breastfeed. It is not known if VOXZOGO passes into breast milk.
Tell your doctor about all of the medicines the patient takes, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

You may report side effects to BioMarin at 1-866-906-6100. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

Please see additional safety information in the full Prescribing Information and Patient Information.

What is VOXZOGO used for?

VOXZOGO is a prescription medicine used to increase linear growth in children with achondroplasia and open growth plates (epiphyses).
VOXZOGO is approved under accelerated approval based on an improvement in annualized growth velocity. Continued approval may be contingent upon verification and description of clinical benefit in confirmatory trials.

Guidance from someone who’s been there